TANGLES The tubing (which looks like aquarium air line) can become kinked and tangled after a day of going back and forth and can actually become kinked to the point of nearly shutting off your air. Where you were at 2 liters before, you are now down to below one. Now you'll need to find the kink and un-kink it. As you do, you'll see the level on your concentrator return to 2. You'll need to check your concentrator as you go by to be sure you are getting the air you need. The concentrator machine is a bit noisy, so you might want to keep it away from your living room and sleeping areas.
When sleeping, you never know if you are going to wake up with your nose hose still in your nose, or if it's to be found atop your head where you pushed it in the night while asleep, or it may be lost on the floor. Aghast, you wonder if you got enough oxygen during the night. You must also remember to take your medicine, including any inhaler prescriptions nightly.
THE PET THING
If you have dogs or other pets at home, they will react to it in different ways. One of mine hates the hose and avoids it like the plague. It's taken him a year to even accept it. The other seems to think it links us together like Siamese twins, and she sits or lays on it every chance she gets. She's responsible for some of my ear tugs, let me tell you! Cats, as you know, love to chase moving "strings". Keep her nails trimmed.
OXYGEN LEVELS
Power failures are worse for you than your computer dying from power failure. If the power goes off, you need to plug into your bottle oxygen, which only lasts a short time, so it's a good idea to have at least 4 filled bottles around continuously. Vacations are planned around your oxygen provider's nationwide or worldwide reach and availability of oxygen wherever you go and when you need it. Trips into town or to the grocery store have to be planned by how much oxygen is in the tank you are taking with you. If it's not enough, you will have to change the tank, removing the regulator and putting it on a full tank before going shopping.
STARING MATCHES
Once outside either with your large tank with the wheels, or with the portable unit, you cannot elude the stares of both children and adults. The worst are the smokers whose minds you can just about read by the way they look at you in horror. "I wonder if that could possibly happen to me? Nahhhh! I'm not old enough yet!" they think. Well, I used to think the very same way! When you have an oxygen tank, you no longer have an "invisible" disease. It is all too visible to the whole world. And it becomes scary. Almost all emphysema is cause by smoking, did you know that?
PREVENTABLE, BUT NON-REVERSIBLE
Emphysema is not a reversible disease because of the manner in which the lung is damaged. You lose more and more elasticity within the lungs as time goes on, and it becomes harder to breathe. You can avoid getting emphysema by quitting smoking just as soon as possible. "Now" would be best. The other option is to never start smoking. Believe me, smoking is not worth going through this in any way, and I wish I had never started smoking as a teen. Guess I should have listened to my Dad, right?
GRATITUDE
The good thing about having this oxygen 24/7 is that my gratitude has grown because my life has been extended for a time by having oxygen to help my body operate as well as it can. Without it, who knows how short the time would be. I hope that my life will be extended long enough for a miracle to happen; medical or otherwise. Truly, I pray a smoking-related disease NEVER ever happens to you.
Christine Rowley
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